Who is conducting the study?
The study is conducted by Wayne State University, in cooperation with the National Cancer Institute at the National Institutes of Health.
How long does it take to participate?
The time will vary depending on your experiences. Generally, however, the survey will last approximately 45-60 minutes. If you are a survivor and consent to a blood draw and saliva collection, this will take approximately 15-30 minutes.
What if I don’t want to answer all the questions?
You do not have to answer any question that you don’t want to. However, every question is asked for a reason and is important to the success of the study. Your responses will be kept confidential and no information will be linked to your name.
How do I know that what I say will be kept confidential?
Your name and contact information is used only to tell you about the study. All identifying information will be kept confidential to the extent permitted by law. All of the people working on this study are professional researchers bound by pledges of confidentiality. This study, like all research studies involving human participants, has been approved by an Institutional Review Board (IRB) which ensures the protection of participants’ privacy and confidentiality. When information about you is being processed, it will be identified only by your study ID#, not by your name. The information that connects the study ID# with your name will be kept under lock and key and will be destroyed after the data are collected and analyzed. The information will be used only for statistical purposes and results will only be published in anonymous group form.
Have another question? Please contact us!